Can We Talk Ben Stiller?
People with disabilities would like to say thank you for writing and producing Tropic Thunder—you and your movie have created a much needed national dialogue for millions of people who have or love people with intellectual and developmental disabilities. Much of the press has been about using the word “Retard” and how hurtful “hate words” can be to millions of people. What has been most hurtful is the fact that “Slow Jack” portrays people with disabilities in a negative light—by emphasizing the fact that we are slow, un-coordinated, un-attractive and unwanted. I wanted to educate you and others about these attributes. Some people with Intellectual Disabilities may process information more slowly—we have learned that with accommodations like “giving us information ahead of time, good supervision, developing regular routines and even repeating things on occasion” we can be leaders in the work place, school settings, churches—the community. Some people with Intellectual Disabilities are uncoordinated—but many of us are talented athletes and even refer to ping pong as “our game”! Some people with Intellectual Disabilities may appear as “unattractive” to others because of bad haircuts or big teeth. Here is some information that might explain why some of us look the way we do… Did you know that many people with disabilities live off of Social Security Income which is about $653 a month? We are expected to pay for our rent and food with this income. We can work—but often we are trained to work at minimum wage jobs without benefits—so we rely on Medicaid for our health insurance. It is important to understand these issues because it means that we can not afford to get the best haircuts and clothes. And in terms of health care –Medicaid does not pay for dental services and if we do have insurance we have found some dentists won’t work on people with Intellectual Disabilities—“It’s not their area of expertise!” Are our teeth really any different? Lastly, and probably one of the most hurtful parts of the movie is when the actors talk about adopting a baby and make reference to the fact “you get to choose your child” rather than “getting stuck” with a child that appears to have a disability…To be honest it is not easy to grow up as a person with a disability or as a sibling of a person of a disability or as a parent of a person with a disability. But once we are here—we are anything but “Unwanted”. Mr. Stiller—Here is one last fact. Having a disability in a country where beauty and riches are valued—leaves millions of people living very lonely and isolated lives. As a result we are some the most avid movie watchers in America. We look up to you and see you as “Stars” because through your movies we experience a life that we don’t often have access too…Why does this hurt so much? Because you have made us feel “Unwanted!” Can we talk Ben Stiller? Jill Egle’Co-Executive Director and a Young Woman with an Intellectual Disability You Tube the letter: “Can We Talk, Ben Stiller?”
August 26th, 2008 at 10:42 am
Thank you for sharing your insightful view of the movie Tropic Thunder. I hope that Ben Stiller and others in the movie industry read your review and think about the points that you raise. Unfortunately, I think that unless someone points out the effect that stereotypical portrayals have on people, actors and others in the film industry tend not to be particularly sensitive to the effect their portrayals can have on people living with the reality of what they are portraying in a story.
I would also like to add that some of the things that you describe as making it possible for you to be a leader, like getting information ahead of time, developing routines, and having information repeated, are also important for some of us who do not have an intellectual disability! Everyone is unique and must figure out what they need to function at their highest potential. I listened to the video presentation of your letter and was impressed by your poise and smooth manner of speaking. Congratulations on your achievements and thank you for sharing your insightful thoughts.
September 11th, 2008 at 7:31 pm
GO JILL!!! KEEP ON CHANGING THE WORLD
September 29th, 2008 at 7:37 pm
Dear Jill Erin Egle:
I was at a ceremony today at the L’Arche Community on Cape Breton Island, in Nova Scotia, Canada. As you may know, L’Arche is an international federation of communities communities where men and women with developmental disabilities, and those who choose to share life with them, live and work together.
The ceremony was to celebrate the fact that L’Arche Cape Breton is the first place to receive high speed Internet service as pasrt of a government program to bring high speed iInternet coverage to all of rural Nova Scotia.
At the ceremony, Jenn Power, the community leader at L’Arche Cape Breton, described how hard it is for people with developmental disabilities to make their voices heard. She said access to the Internet is an important tool in giving all people a voice. As an example, she mentioned that some people with intellectual disabilities had recorded YouTube videos to protest the use of the hurtful word “retard” in Ben Stiller’s new movie.
Once I got home, I did a search and quickly found your YouTube commentary.
Jill, you did a beautiful job explaining the impact of thoughtless labeling. I know anyone who sees your video will learn come away with a better understanding of how much this kind of thing hurts. I certainly hope Mr. Stiller sees it, and takes the time to get in touch with you.
Thank you for a wonderful piece of writing, beautifully delivered.
Best regards,
Parker Donham
Kempt Head, NS B1X-1R8
November 17th, 2008 at 10:04 am
Thanks so much Jill. I am sharing your video with my staff.
Best wishes!